April is a busy month for Thomas. He is starting to see Early Intervention at daycare. He will be seeing an occupational therapist once a week for drinking and a speech therapist once a month just to check in a make sure he is doing okay. He saw the occupational therapist (OT) for the first time today. We basically just discussed what was going on with Thomas and she told me what I had already assumed... it's really hard to teach a kid to drink when it's honey thick liquid! You have to wait so long for the liquid to move, so by the time he "drinks" the liquid hasn't even made it to his lips! He does have some good days at daycare where he will drink 1-5 ounces, so that's great. He won't do it at home though! He will demand the spoon. Of course, when he sees an empty cup, he has no problem showing he has the skills needed!!!!
We will see the speech therapist in 2 weeks, but I am not too concerned with it. He says things like "bubble" and "water" and he understands things we say. Coming up on April 11, Thomas will have another modified barium swallow. This is where we test him with different thicknesses of liquids. I am trying to not get my hopes up because I have a feeling we will be stuck at honey thick, but it would be great to just downgrade to nectar thick! We then see the ORL surgeon on April 26 to discuss the results and our game plan (like do we need to fix the cleft). On April 28, Thomas will have his endoscopy. This is for his eosinophilic esophagitis (EE). They will be taking biopsies of his small intestine and his stomach. We have to wait 1-2 weeks for the results and found out if his EE is gone. It involves counting numbers of different cells. If it's gone, we can decide to add something back (as you know, I want to add dairy). If it's not gone, we will have to eliminate soy, which will be VERY difficult. He is currently on soy milk and it's in a lot of things.
So that is Thomas' April. Busy! Hopefully with lots of good news too. In the regular world of Thomas, he has become a fan of the downward dog yoga position.
I have about 20 more pictures of him doing this. He also loves if you peek at him in between his legs. He laughs out loud everytime! He has upgraded himself to a booster seat. No more high chair! I kind of guessed he was ready for this, because he would say he was all done eating, but then I would take him out of the high chair, put him in my lap at the table, and then he would keep eating! He loves the booster seat! And I finally got him crayons so he can color... that gives me a little more time to finish eating my own meal!
He continues to do the "ear rub" when he is tired. He has been doing this since he was about 6 months old. This is him at the end of the day....
He loves his chair. He climbs all over it. Jumps up and down, slides off, jumps off... This is him dancing on the chair while watching his movie before bed time (which is a children's songs movie)...
Another thing we have discovered that Thomas does is "pop" when you say the word. He bends down and pops up! Steve and I have never done that, and I confirmed that daycare does not do it either, they don't do it in his movie we watch (Pop Goes the Weasel), so we have no idea where it came from, but it's pretty cute!
As for Steve and I, Steve has been really busy at MIT. He is having a meeting with his committee in May to present a proposal for his thesis. This is a 50ish page document that they will look over and either say yes, do this or no, this is stupid and a waste of time. He has been meeting with his adviser here and there, so we are really hoping that he would have said something if it was a waste of time (his adviser is on his committee). But the good news is that he is working really hard on this document and making it a great paper because he will be able to use it in his actual thesis, and, therefore, already have some of it written!!!! That will be amazing. We did manage to have a date night over the weekend, we went to a new pizza and wine bar (could there be a better combination???) and a fun, upscale bar with 25 beers on tap. It was a lot of fun, though sometimes I worry about what the babysitter thinks when we come home after maybe having a drink or more than we should have... oh well. I have just been continuing to try and be as supportive of Steve as possible and as happy and cheerful as I can be with Thomas though I can't wait for the day when Steve works normal hours and has the weekends off.
I will close this with a funny, potentially gross, picture that I find hilarious. Can you guess what Thomas is doing? My mom knew right away! Haha.
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